Post from Facebook on 4/10/2013

What's on my mind Facebook asks. Well, about 1 month ago, my youngest son was diagnosed with epilepsy, just two short days after I was laid off from my job. I'm not too worried about finding a new job, what I am worried about is my son, Grant. To see someone so young, so vulnerable, so innocent go through something like this is truly heartbreaking, especially when this person is your own child. After multiple tests, an MRI, and an EEG, it was told to us that he has cortical dysplasia of the frontal lobe. Basically when the brain forms in utero, some cells don't migrate where they are supposed to go. This leaves too many brain cells (gray matter) where white matter should be. This extra matter is causing Grant to have multiple seizures a day. The type he is having is called atonic or "drop" seizures. His head drops forward, then he either stumbles or falls to the ground. He has stumbled into walls, posts, etc. Again to see someone so young and innocent go through this is absolutely heartbreaking. He is on medication, but the seizures have not stopped. The neurologist told us the type and location of seizures tend to be medicinally resistant. The seizures have also caused some developmental delays. He running about six months behind his age. The problem is we cannot move forward with any type of therapy to help him catch up until the seizures are under control. So, Rylea and I play a waiting game. A very painful, gut wrenching, horrible, very bad, no good waiting game.