Some Levity Please

I have always been one to find humor in most things. The problem with that is there are certain things in life in which humor should not be found. With that said, I have been looking over the blog about Grant and have noticed a certain clinical coldness to the entries. They are very matter-of-fact. While there isn't much funny about this situation, there are times I have to sit back and laugh at certain things. Things such as when Grant will run up to me or Rylea or Cole and hit us on the back or arm with his hand and say "Hey" and then run off make me laugh or his reactions to certain things like the lights going off or loud noises. Despite his issues, he's still a little kid and kids are just funny. 

I have realized this tone has come from the numerous conversations I have had with the doctors. I will say, out of all the doctors we have met and/or talked to, neurologist seem to be the most matter-of-fact and straight to the point. I feel very awkward making small jokes (usually out of my own nervousness) to or in front of them.

The tone has also come from the clinical papers and studies I have read (and tried to understand) in an attempt to learn more about Grant's condition, prognosis, and any future outcome. The doctors seem to be a little reluctant to give us any hint of what the future may hold. I believe this is because we are still very early in the process, and they still don't have any real answers beyond he is having seizures, he has cortical dysplasia, and the cortical dysplasia is most likely causing the seizures. There I go again, being very matter-of-fact. 

So to bring some levity to the blog and situation, I will try and add a little humor where I can (without being too insensitive).To start off, here's a little anecdote; a little while back, when we first started to give Grant's doctors weekly reports on his seizures, I started singing a song from one Cole's cartoons but changed the words. The song came from the show "The Octonauts" and at the end of each show, they do a creature report. Well, there is song that goes with it (click here to hear the song). One day I changed the words from "Creature report" to "Seizure report." Cole thought this was funny and now whenever we see Grant have seizure that isn't too serious (one where he doesn't hurt himself or cry afterwards), we sing the song. This is partly to remind us to write it down, and partly to not scare Cole too much about the whole situation. 

In the future I hope Grant can be able to laugh at this when appropriate. Actually, I hope that in future, I can look back and ask Grant, "Remember when you used to have seizures?" and he looks at me says "No dad, I was like 2 years old, I don't remember anything from when I was 2."